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Category: Ataxia UK
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A life support
Navigating the early years of a diagnosis is a critical time for parents. For Bryce’s family, finding Ataxia UK was the turning point, having been told that he has a type of cerebellar ataxia known as AOA1. They were able to attend an Ataxia UK conference which helped them...
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Celebrating differences
Through Ataxia UK’s network, families are able to connect with one another and benefit from the support of shared experiences. After a regular health check at two-years-old, Maisie was referred to a specialist and subsequently diagnosed with cerebellar ataxia atrophy aged three, turning her family’s world upside-down. With the...
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Paralympic aspirations
Yasmina is the star of our Christmas video this year. She is supported by two of the four Childlife partner charities – Ataxia UK who offer invaluable advice and support to families affected by ataxia and fund vital research into finding a cure, and the National Children’s Bureau, who...
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Strength in adversity
When no one else quite understands, Ataxia UK makes the world easier to navigate. Parents often have a sixth sense that something is ‘not quite right’ with their child. And as Phoebe’s mum is also a nurse, she knew the warning signs which should not be ignored. ‘Phoebe was...
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