05 November 2024
Navigating the early years of a diagnosis is a critical time for parents. For Bryce’s family, finding Ataxia UK was the turning point, having been told that he has a type of cerebellar ataxia known as AOA1. They were able to attend an Ataxia UK conference which helped them...
30 April 2024
Through Ataxia UK’s network, families are able to connect with one another and benefit from the support of shared experiences. After a regular health check at two-years-old, Maisie was referred to a specialist and subsequently diagnosed with cerebellar ataxia atrophy aged three, turning her family’s world upside-down. With the...
19 December 2023
Yasmina is the star of our Christmas video this year. She is supported by two of the four Childlife partner charities – Ataxia UK who offer invaluable advice and support to families affected by ataxia and fund vital research into finding a cure, and the National Children’s Bureau, who...
14 November 2023
When no one else quite understands, Ataxia UK makes the world easier to navigate. Parents often have a sixth sense that something is ‘not quite right’ with their child. And as Phoebe’s mum is also a nurse, she knew the warning signs which should not be ignored. ‘Phoebe was...