Childlife

04 September 2023

Ataxia UK 22/23 review

The ataxias are a set of life-limiting neurological conditions that disrupts the messages sent from our brains to our muscles. Not just the muscles we use to move, but those we use to speak, listen and see. Over time, people with ataxia are slowly imprisoned in their own bodies,...
04 May 2023

Wearable tech breakthrough

Exciting research from two ground-breaking studies shows the power of wearable technology and artificial intelligence in monitoring movement disorders, including Friedreich’s ataxia (FA). FA is the most common type of hereditary ataxia, often presenting in childhood or adolescence. Around 500 children in the UK have ataxia, impairing their balance,...
10 November 2022

Supporting Penny-Mae

Penny-Mae is 11 and has ataxia, as well as other complex needs, presenting challenges to her Mum, Emma, in all aspects of her life. She has low muscle tone throughout her body, with her legs being particularly affected, so she crawls to get around indoors and wears splints to...
12 May 2022

The impact of an ataxia diagnosis

Soon after Christmas 2019, Amy made a GP appointment for Darcy, then seven – she was concerned that something significant had changed with the way she walked. At around the same time, teachers at school, dancing and swimming lessons had mentioned issues with her balance and mobility. The diagnosis...

Category: Ataxia UK