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22 November 2018
Understanding ataxia
Joanna, known as Jo-Jo, is a “happy little girl with a sunny nature” and, says Mum Susie, “she loves music and can often be heard singing loudly at the top of her voice”. The six-year-old also has a keen eye for fashion and likes to give a thumbs up...
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22 November 2018
Jo-Jo and Gillespie Syndrome
A journey into the unknown by Susie and Ben Slack When we decided to include Jo-Jo’s story in our InTouch Autumn newsletter to supporters, we received the following, which we felt we really wanted to publish in full online, as we are limited to shorter articles in our printed...
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03 May 2018
Ronnie’s story
‘Ataxia’ describes a range of neurological disorders that affect balance, coordination and speech. There are many different types of ataxia that affect people in different ways and for nine-year-old Ronnie, this means he’s never been able to walk, has difficulty swallowing, coping with loud noises and has a squint....
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