Two-year-old Oscar-Ray arrived safely at 40 weeks, after a problem-free pregnancy for mum, Charlotte. But just two days later, he began having seizures and was rushed to the hospital neonatal unit to be observed by a specialist team, where he was having up to five seizures an hour. It...
When Dad Earldon takes sons Theo and LeBron to Acorns in Walsall, he says they feel at ease straight away. “They feel welcome and they feel safe and those are the main things you want for your children.” His sons both have a chromosome disorder which means their lives...
For parents, Claire and Simon, attending Acorns Children’s Hospice with their five-year-old son George, who has Batten Disease, means they feel less isolated, supported and safe. “It’s our release button, it’s our escape, it’s our sanctuary.” Up until the age of three, George hit all the major milestones, like every...
Taye was seven months old when he was diagnosed with a rare condition, generalised bilateral cerebral polymicrogyria, which causes epilepsy, vision and development problems, as well as stiffness in his muscles. Taye’s Mum, Chealse, had spent the first few months of his life going back and forth to A&E...