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Born too soon
Sam and Mike are Mum and Dad to Alexus, Natalie and Rachel. They are supported by Childlife member charity, Acorns Children’s Hospice. Mike tells us their story: “Our twin girls, Alexus and Natalie, were born at 23 weeks. When born that early a baby’s lungs are not fully developed...
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Short breaks provide safety net
Acorns Children’s Hospice isn’t only about end of life care. It’s about enabling children and families to live life to the full, with the emotional, clinical and medical care they need – often over many years. This can include tailored nursing care during short breaks in the hospice and...
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Facing ataxia’s huge challenges
Oli is 12 years old and has Friedreich’s Ataxia (FA). In Year 6 he kept falling over at school and was sent straight to hospital where he stayed for a week. In that time, he had scans, blood tests, more scans, a lumbar puncture and then a genetic test,...
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Making a difference for deaf children
The National Deaf Children’s Society is a key voice in the deaf community, representing deaf children, young people and their families as an advocate and policy influencer. One of the ways they support deaf children is through Children’s Hearing Services Working Groups (CHSWGs), affectionately known as ‘Chizzywigs’. CHSWGs are...
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