Phoebe’s mum, Hannah knew something was ‘not quite right’ with her daughter. Still, it took nearly a year and several wrong turns before arriving at a diagnosis of Friedreich’s ataxia; a little-known condition that brought with it a lot of worries and questions.
Mum Nizet would do anything for her daughter, Marwah; a happy bubbly little girl who has a rare life-limiting condition. But providing round-the-clock care still takes a huge toll on her energy levels and her opportunity to just be ‘Mum’.
National Children’s Bureau has just launched an innovative project to help care-experienced young people to share their experiences through creative mediums such as painting, poetry, and theatre, and to help shape the solutions that will actually meet their needs.
National Deaf Children’s Society has just launched a new five-year strategy that seeks to transform the lives of even more deaf children by strengthening support in the early years and as soon deafness is first identified.
Play the Childlife Lottery and you could win £25,000, £1,000 or £25 in the weekly draw. You can play for just £1 a week and know that as well as being in with a chance to treat yourself, you are lending an extra helping hand to us too.
Give as you Live is the easy way to shop and raise money for Childlife. Simply sign up for an account and start raising when you shop through Give as you Live Online at any of the 4,500 retail partners.
